{"id":18229,"date":"2026-09-10T08:01:27","date_gmt":"2026-09-10T08:01:27","guid":{"rendered":"https:\/\/www.paolochiesifoundation.org\/?p=18229"},"modified":"2026-10-06T08:14:17","modified_gmt":"2026-10-06T08:14:17","slug":"congreso-ers-2026","status":"publish","type":"post","link":"https:\/\/www.paolochiesifoundation.org\/es\/congreso-ers-2026\/","title":{"rendered":"Mapeando el recorrido del paciente: La Fundaci\u00f3n Paolo Chiesi en el Congreso de la ERS 2026"},"content":{"rendered":"<div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1216.8px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-1\"><p>La experiencia de un paciente con una enfermedad respiratoria cr\u00f3nica rara vez comienza con un diagn\u00f3stico. Comienza antes: con un s\u00edntoma no reconocido, una cita perdida, un sistema de salud mal preparado para responder a tiempo.<\/p>\n<h3 data-fontsize=\"24\" style=\"--fontSize: 24; line-height: 1.35;\" data-lineheight=\"32.4px\" class=\"fusion-responsive-typography-calculated\"><strong>Simposio sobre la experiencia del paciente<\/strong><\/h3>\n<p>Estos son los retos centrales del simposio organizado por la Fundaci\u00f3n Paolo Chiesi el 7 de septiembre, durante el <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.ersnet.org\/congress-and-events\/congress\/\" target=\"_blank\" rel=\"noopener\"><strong>Congreso de la Sociedad Respiratoria Europea (ERS) de 2026<\/strong><\/a> en Barcelona, \u200b\u200bjunto con Chiesi Farmaceutici. Bajo el t\u00edtulo \u00ab<em>De los s\u00edntomas a la atenci\u00f3n en entornos con recursos limitados: trazando el recorrido del paciente con enfermedades respiratorias cr\u00f3nicas<\/em>,\u00bb la sesi\u00f3n reuni\u00f3 a representantes del mundo acad\u00e9mico, instituciones sanitarias y organizaciones internacionales para analizar qu\u00e9 sucede realmente <strong>entre la aparici\u00f3n del primer s\u00edntoma y el acceso a la atenci\u00f3n continua<\/strong> en entornos con recursos limitados.<\/p>\n<h3 data-fontsize=\"24\" style=\"--fontSize: 24; line-height: 1.35;\" data-lineheight=\"32.4px\" class=\"fusion-responsive-typography-calculated\"><strong>Voces desde el escenario<\/strong><\/h3>\n<p>Moderado por <strong>Mario Scuri<\/strong>, asesor t\u00e9cnico respiratorio de la Fundaci\u00f3n, el panel incluy\u00f3 a <strong>Mar\u00eda Paola Chiesi<\/strong>, presidenta de la Fundaci\u00f3n; <strong>Jos\u00e9 Luis Castro<\/strong>, enviado especial del director general de la OMS para las enfermedades respiratorias cr\u00f3nicas; <strong>David de la Rosa Carrillo<\/strong>, presidente de la <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.separ.es\/\" target=\"_blank\" rel=\"noopener\">Sociedad Espa\u00f1ola de Neurolog\u00eda y Cirug\u00eda Tor\u00e1cica (SEPAR)<\/a>; <strong>Miguel \u00c1ngel S\u00e1nchez de Toro<\/strong>, de <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.separ.es\/separ-solidaria\" target=\"_blank\" rel=\"noopener\">SEPAR Solidaria<\/a>; y <strong>Refiloe Masekela<\/strong>, neum\u00f3logo pedi\u00e1trico y decano de la Universidad de KwaZulu-Natal.<\/p>\n<p>En conjunto, los ponentes identificaron las deficiencias, los retrasos y las barreras estructurales que impiden que las personas en entornos con recursos limitados reciban <strong>una atenci\u00f3n respiratoria oportuna y adecuada<\/strong>, desde el acceso a herramientas de diagn\u00f3stico hasta la continuidad de la atenci\u00f3n y la solidez de los sistemas de salud locales.<\/p>\n<h3 data-fontsize=\"24\" style=\"--fontSize: 24; line-height: 1.35;\" data-lineheight=\"32.4px\" class=\"fusion-responsive-typography-calculated\"><strong>Un desaf\u00edo para la salud del Sur Global<\/strong><\/h3>\n<p>Las enfermedades respiratorias cr\u00f3nicas ya figuran entre las principales causas de muerte en todo el mundo. El impacto de ambas afecciones es considerable. <strong>En 2023, el asma afect\u00f3 a aproximadamente 363 millones de personas, causando 442 000 muertes<\/strong>, mientras que <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/chronic-obstructive-pulmonary-disease-(copd)\" target=\"_blank\" rel=\"noopener\"><strong>la EPOC caus\u00f3 3,4 millones de muertes<\/strong><\/a>, situ\u00e1ndose como la tercera causa principal de muerte a nivel mundial.<\/p>\n<p>Sin embargo, este impacto no se distribuye de manera uniforme. La mayor\u00eda de las muertes relacionadas con el asma ocurren en pa\u00edses de ingresos bajos y medios-bajos, donde el infradiagn\u00f3stico y el tratamiento inadecuado siguen siendo grandes desaf\u00edos; en el caso de la EPOC, <strong>casi el 90 % de las muertes entre personas menores de 70 a\u00f1os ocurren en pa\u00edses de ingresos bajos y medios<\/strong>. La capacidad de diagn\u00f3stico cuenta una historia similar: la espirometr\u00eda, la prueba b\u00e1sica utilizada para diagnosticar la EPOC y el asma, solo est\u00e1 disponible en <strong>un n\u00famero limitado de centros de salud p\u00fablica<\/strong> en pa\u00edses de bajos ingresos, mientras que los medicamentos esenciales, como los inhaladores, a menudo est\u00e1n agotados o son inasequibles precisamente donde m\u00e1s se necesitan.<\/p>\n<h3 data-fontsize=\"24\" style=\"--fontSize: 24; line-height: 1.35;\" data-lineheight=\"32.4px\" class=\"fusion-responsive-typography-calculated\"><strong>El modelo GASP en la pr\u00e1ctica<\/strong><\/h3>\n<p>El simposio se bas\u00f3 en la experiencia de campo de <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.paolochiesifoundation.org\/es\/programa-gasp\/\" target=\"_blank\" rel=\"noopener\">GASP (Global Access to Sustainable Pulmonology)<\/a>, el modelo que la Fundaci\u00f3n cre\u00f3 para abordar esta brecha. El modelo GASP surgi\u00f3 de un proyecto piloto de capacitaci\u00f3n en <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.paolochiesifoundation.org\/guyana\/\" target=\"_blank\" rel=\"noopener\">Guyana<\/a>, desarrollado con la Asociaci\u00f3n Pulmonar de Columbia Brit\u00e1nica, que dio lugar a la creaci\u00f3n del <strong>primer laboratorio de espirometr\u00eda del pa\u00eds<\/strong> y un programa de capacitaci\u00f3n dirigido a trabajadores de la salud locales, pacientes y familias. Desde entonces, el modelo se ha expandido a <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.paolochiesifoundation.org\/nepal\/\" target=\"_blank\" rel=\"noopener\">Nepal<\/a> y <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.paolochiesifoundation.org\/peru\/\" target=\"_blank\" rel=\"noopener\">Per\u00fa<\/a>: solo en 2024, lleg\u00f3 a <strong>m\u00e1s de 15 000 pacientes<\/strong> y capacit\u00f3 a 44 profesionales de la salud en el diagn\u00f3stico y manejo del asma y la EPOC. En Per\u00fa, en particular, el crecimiento tambi\u00e9n se vio impulsado por la <strong>colaboraci\u00f3n con<\/strong> <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.chiesi.es\/\" target=\"_blank\" rel=\"noopener\"><strong>Chiesi Spain<\/strong><\/a> <strong>y SEPAR<\/strong>, la misma alianza que contribuy\u00f3 a la formaci\u00f3n del panel de Barcelona. En lugar de traer atenci\u00f3n m\u00e9dica del exterior, GASP est\u00e1 dise\u00f1ado <strong>para fortalecer las habilidades diagn\u00f3sticas y cl\u00ednicas locales<\/strong>, de modo que los sistemas de salud y los profesionales locales puedan garantizar una atenci\u00f3n respiratoria de calidad a lo largo del tiempo.<\/p>\n<h3 data-fontsize=\"24\" style=\"--fontSize: 24; line-height: 1.35;\" data-lineheight=\"32.4px\" class=\"fusion-responsive-typography-calculated\"><strong>Fortalecimiento del modelo GASP a trav\u00e9s del recorrido del paciente.<\/strong><\/h3>\n<p>El simposio tambi\u00e9n destac\u00f3 c\u00f3mo <strong>el recorrido del paciente puede utilizarse como una herramienta pr\u00e1ctica para fortalecer el dise\u00f1o y la implementaci\u00f3n del Modelo GASP<\/strong>.<\/p>\n<p>En lugar de introducir un nuevo modelo, el enfoque de la trayectoria del paciente permite a la Fundaci\u00f3n y a sus socios ver la atenci\u00f3n respiratoria desde la perspectiva del paciente. Mapear esta trayectoria nos permite identificar <strong>las deficiencias, los retrasos y las barreras que los pacientes encuentran en la vida real<\/strong>, as\u00ed como identificar \u00e1reas donde las intervenciones ofrecen el mayor potencial de mejora en el acceso, la calidad y la continuidad de la atenci\u00f3n.<\/p>\n<p>Al integrar la evidencia obtenida sobre el terreno con una mejor comprensi\u00f3n de la experiencia del paciente, los recorridos de los pacientes pueden servir de base para el dise\u00f1o, la implementaci\u00f3n y la adaptaci\u00f3n de las intervenciones GASP a las realidades de los contextos en los que las personas viven y buscan atenci\u00f3n m\u00e9dica.<\/p>\n<h3 data-fontsize=\"24\" style=\"--fontSize: 24; line-height: 1.35;\" data-lineheight=\"32.4px\" class=\"fusion-responsive-typography-calculated\"><strong>Convertir los compromisos en atenci\u00f3n<\/strong><\/h3>\n<p>Trazar el camino, sin embargo, es solo un punto de partida. Transformar los compromisos globales sobre enfermedades respiratorias cr\u00f3nicas <strong>en tratamientos locales concretos<\/strong> \u2014y la evidencia en pr\u00e1ctica\u2014 requiere fortalecer los sistemas de salud, invertir en el conocimiento local y establecer alianzas a largo plazo. Este es el mismo enfoque que la Fundaci\u00f3n aplica a todos sus programas: no traer soluciones externas, sino trabajar <strong>junto a las instituciones y comunidades locales<\/strong> para que puedan impulsar y sostener el cambio de forma independiente.<\/p>\n<p>En definitiva, esto significa incorporar el sentido de pertenencia y la rendici\u00f3n de cuentas en la forma en que se conciben las iniciativas desde el principio.<\/p>\n<\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":9,"featured_media":18227,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[58],"tags":[],"class_list":["post-18229","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-sin-categorizar"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Mapeando el recorrido del paciente: La Fundaci\u00f3n Paolo Chiesi en el Congreso de la ERS 2026 - Paolo Chiesi Foundation<\/title>\n<meta name=\"description\" content=\"\u00bfQu\u00e9 ocurre entre la aparici\u00f3n del primer s\u00edntoma y el acceso a la atenci\u00f3n m\u00e9dica en el Sur Global? 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