{"id":18195,"date":"2026-09-10T08:01:27","date_gmt":"2026-09-10T08:01:27","guid":{"rendered":"https:\/\/www.paolochiesifoundation.org\/?p=18195"},"modified":"2026-10-06T08:16:14","modified_gmt":"2026-10-06T08:16:14","slug":"ers-congress-2026","status":"publish","type":"post","link":"https:\/\/www.paolochiesifoundation.org\/en\/ers-congress-2026\/","title":{"rendered":"Mapping the Patient Journey: the Paolo Chiesi Foundation at ERS Congress 2026"},"content":{"rendered":"<div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1216.8px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-1\"><p>A patient&#8217;s journey with a chronic respiratory disease rarely starts with a diagnosis. It starts earlier \u2014 with a symptom that goes unrecognized, a visit that never happens, a health system that isn&#8217;t equipped to respond in time.<\/p>\n<h3><strong>A Symposium on the Patient Journey<\/strong><\/h3>\n<p>These challenges were at the heart of the symposium the Paolo Chiesi Foundation organized on 7 September at the <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.ersnet.org\/congress-and-events\/congress\/\" target=\"_blank\" rel=\"noopener\"><strong>European Respiratory Society (ERS) Congress 2026<\/strong><\/a> in Barcelona, alongside Chiesi Group. Titled &#8220;<em>From Symptoms to Care in Resource-Limited Settings: Mapping the Patient Journey of Chronic Respiratory Diseases<\/em>,&#8221; the session brought together voices from academia, healthcare institutions and international organizations to examine what actually happens <strong>between a first symptom and long-term care<\/strong> in resource-limited settings.<\/p>\n<h3><strong>Voices from the Stage?<\/strong><\/h3>\n<p>Chaired by <strong>Mario Scuri<\/strong>, Respiratory Technical Advisor of the Foundation, the panel included <strong>Maria Paola Chiesi<\/strong>, President of the Paolo Chiesi Foundation; <strong>Jos\u00e9 Luis Castro<\/strong>, WHO Director-General&#8217;s Special Envoy for Chronic Respiratory Diseases; <strong>David de la Rosa Carrillo<\/strong>, President of the <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.separ.es\/\" target=\"_blank\" rel=\"noopener\"><em>Sociedad Espa\u00f1ola de Neumolog\u00eda y Cirug\u00eda Tor\u00e1cica (SEPAR)<\/em><\/a>; <strong>Miguel \u00c1ngel S\u00e1nchez de Toro<\/strong>, of <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.separ.es\/separ-solidaria\" target=\"_blank\" rel=\"noopener\"><em>SEPAR Solidaria<\/em><\/a>; and <strong>Refiloe Masekela<\/strong>, pediatric pulmonologist and Dean at the University of KwaZulu-Natal.<\/p>\n<p>Together, the speakers mapped the gaps, delays, and structural barriers that keep people in resource-limited settings from receiving <strong>timely, appropriate respiratory care<\/strong> \u2014 from access to diagnostic tools to continuity of treatment and the strength of local health systems.<\/p>\n<h3><strong>A Health Challenge with a Global South Face<\/strong><\/h3>\n<p>Chronic respiratory diseases are already among the leading causes of death worldwide. The burden is substantial for both conditions. <strong>Asthma affected an estimated 363 million people and caused 442,000 deaths in 2023<\/strong>, while <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/chronic-obstructive-pulmonary-disease-(copd)\" target=\"_blank\" rel=\"noopener\"><strong>COPD caused 3.4 million deaths<\/strong><\/a>, making it the third leading cause of death worldwide.<\/p>\n<p>Yet the burden is not equally distributed. Most asthma-related deaths occur in low- and lower-middle-income countries, where under-diagnosis and under-treatment remain major challenges; for COPD, nearly <strong>90% of deaths among people under 70 occur in low- and middle-income countries<\/strong>.<\/p>\n<p>Diagnostic capacity tells a similar story \u2014 spirometry, the basic test used to diagnose COPD and asthma, is available in <strong>only a small share of public health facilities<\/strong> in low-income countries, and essential medicines such as inhalers are often out of stock or unaffordable where they are needed most.<\/p>\n<h3><strong>The GASP Model in Practice<\/strong><\/h3>\n<p>The symposium drew on field evidence from <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.paolochiesifoundation.org\/programma-gasp\/\" target=\"_blank\" rel=\"noopener\">GASP (Global Access to Sustainable Pulmonology)<\/a>, the Model the Foundation has built to respond exactly to this gap. The GASP Model grew out of a pilot training project in <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.paolochiesifoundation.org\/guyana\/\" target=\"_blank\" rel=\"noopener\">Guyana<\/a>, developed with the British Columbia Lung Association, which led to <strong>the country&#8217;s first spirometry laboratory<\/strong> and a training program for local health workers, patients, and families. The Model has since expanded to <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.paolochiesifoundation.org\/nepal\/\" target=\"_blank\" rel=\"noopener\">Nepal<\/a> and <a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.paolochiesifoundation.org\/peru\/\" target=\"_blank\" rel=\"noopener\">Peru<\/a>: in 2024 alone, it reached <strong>more than 15,000 patients<\/strong> and trained 44 healthcare professionals in the diagnosis and management of asthma and COPD. In Peru specifically, growth has also been driven thanks to <strong>the collaboration with <\/strong><a style=\"color: #85c9f0; text-decoration: underline;\" href=\"https:\/\/www.chiesi.es\/\" target=\"_blank\" rel=\"noopener\"><strong>Chiesi Espa\u00f1a<\/strong><\/a><strong> and SEPAR<\/strong> \u2014 the same partnership that shaped the panel in Barcelona. Rather than delivering care from the outside, GASP is built <strong>to strengthen local diagnostic and clinical skills<\/strong>, so that health systems and local professionals can sustain quality respiratory care over time.<\/p>\n<h3><strong>Strengthening GASP through the Patient Journey<\/strong><\/h3>\n<p>The symposium also highlighted how the <strong>Patient Journey can be used as a practical tool to strengthen the design and implementation of the GASP Model<\/strong>.<\/p>\n<p>Rather than introducing a new model, the Patient Journey approach helps the Foundation and its partners look at respiratory care from the patient\u2019s perspective. Mapping this journey makes it possible to identify <strong>where patients encounter gaps, delays and barriers in real-life settings<\/strong>, and where interventions can have the greatest potential to improve access, quality and continuity of care.<\/p>\n<p>By combining field evidence with a better understanding of patients\u2019 experiences, the Patient Journey can help inform how GASP interventions are designed, implemented and adapted to the realities of the contexts where people live and seek care.<\/p>\n<h3><strong>Turning Commitments into Care<\/strong><\/h3>\n<p>Mapping the journey, though, is only a starting point. Turning global commitments on chronic respiratory diseases<strong> into on-the-ground care<\/strong> \u2014 and evidence into practice \u2014 takes health-system strengthening, investment in local capacity, and long-term partnerships.<\/p>\n<p>It&#8217;s the same approach the Foundation applies across its programs: not delivering solutions from the outside but working <strong>alongside local institutions and communities<\/strong> so they can lead and sustain change themselves.<\/p>\n<p>Ultimately, this means building ownership and accountability into the way initiatives are designed from the outset.<\/p>\n<\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":9,"featured_media":18194,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[40],"tags":[],"class_list":["post-18195","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Mapping the Patient Journey: the Paolo Chiesi Foundation at ERS Congress 2026 - Paolo Chiesi Foundation<\/title>\n<meta name=\"description\" content=\"What happens between a first symptom and long-term care in the Global South? 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